‘And, a lot of that has been brought about by Tayla’s increased independence and she contributes to the family in ways that we didn’t realise she could. Tayla’s had some amazing strides in her walking.
‘When Tayla now gets on a school bus or goes to school holiday programs, she actually walks out the house, very happy and confidently. She steps into the car herself, which for Tayla is a very strong feeling of being able to do something herself.
‘One of the things NDIA have put in place for us is funding to have a case coordinator. It’s really important having a coordinator like Val as ultimately when Tayla enters adulthood we want her plan driven directly by herself. And, we’re not going to live forever!
‘A very long term goal, but we really believe in it for Tayla, is talking.
‘No matter how much our carers and therapists and schools try and learn some key signs, there’s nothing quite like if Tayla can actually explain her needs through speech, instead of having some cards for people to know.
‘That would be wonderful.’