Mother of three Amy said it was a bittersweet moment when son, Alexander, who has autism, no longer needed NDIS support because he had achieved all his milestones and was now ready for mainstream school. One of the enablers was the connection to access a paediatrician within the health system. This means Alexander will be able to continue with mainstream, ongoing support independent of the NDIS.
Amy said while she and her husband were ecstatic with their six-year-old’s progress, they did shed some happy and sad tears.
“It was bittersweet,” Amy confessed. “We were so happy Alex had reached all his milestones and we were self-sufficient, and it was a good feeling to think Alex no longer needed the $10,000 he had left in his budget and it would go towards helping somebody else. But at the same time, we felt a bit sad because it was like losing a family member. Alex’s occupational therapist, Helen, had been working with him for 18 months and she became so important to us.
“Helen, like us, saw him go from a boy who refused to hold anything, not even a pencil, who wouldn’t comply with anything, start to draw and colour-in properly; use scissors to cut out; write his name; write letters and tie his shoe laces – it was just amazing!”
Amy said they moved the family from Queensland to thetwo years ago. “Initially we were on Better Start in Queensland and when we announced we were moving to Nicholls, our autism advisor said the NDIS was in so they helped us transition straight away,” Amy said.
“It all happened so smoothly. NDIS staff were wonderful and really accommodating. I was able to do everything over the phone. It was such a relief not to go into an office and have meetings because, at that stage, Alex was very non-compliant.
“Just to have NDIS funding to access required supports has been life changing!”
“Who knows, in six months Alex may need extra care, it’s great to know we can apply to get back on the Scheme if need be.”