Goal 1: People with disability have choice and control

The intended outcome of Goal 1 is that ‘people with disability plan and exercise choice and achieve their goals for independence, social and economic participation, increased self-determination and self-management.’21

Under Goal 1, the NDIA also reports on the performance criteria under Program 1.1 – Reasonable and necessary care and support for participants under the relating to the number of participants.22

Strategy 1.1

Strategy 1.1 is to ‘build the capacity of people with disability to exercise choice and control in the pursuit of their goals’.23

Over the year, the Agency focussed on building the capacity to deliver the following activities as identified in the Corporate Plan:

  • encouraging, enabling and challenging participants to take control and self-manage their supports (with support from family and carers where needed);
  • supporting people with disability to make informed choices in all their dealings, including through information, capability and linkage;
  • providing certainty of supports for participants including early intervention supports, through adequate funding and underwriting of the Scheme; and
  • delivering the Agency’s market stewardship functions to facilitate the development of a diverse and competitive market.

Key performance measures for Strategy 1.1

  • The NDIS aims to improve the choice and control available to people with disability. In 2016-17, 60,357 participants entered the Scheme and received an approved plan. In addition, 6,134 children were supported in the Early Childhood Early Intervention () approach. At 30 June 2017, this has resulted in 90,638 participants in total. This represents 83 per cent of the cumulative bilateral estimate of states and territories at 30 June 2017.24
  • At 30 June 2017, $370 million was allocated to current plans for active early intervention participants (eight per cent of the total).
  • The NDIS encourages participants to take control and self-manage their supports when they consider it appropriate. Seven per cent of participants are self-managed fully; nine per cent are partly self-managed; 11 per cent managed with the assistance of a plan manager; and 73 per cent are Agency-managed. The Agency has set a target of 18 per cent of participants being fully or partly self-managed by 30 June 2018.
  • The baseline data captured during this first year of transition (2016-17) shows that 46 per cent of participants choose who supports them.25
  • A healthy, innovative and efficient market of supports is also needed to support a culture of choice and control for a full range of disability services.26 Market growth over the year resulted in:
    • 8,698 registered providers approved to deliver disability supports to NDIS participants in at least one registration group at 30 June 2017. This is an increase of 5,179 registered providers from 30 June 2016; and
    • 1,763 providers assisting with providing more choice and control as they are providing new types of supports to participants.

Strategy 1.2

Strategy 1.2 is to ‘promote the independence and social and economic participation of all people with disability and especially those who are vulnerable or marginalised’.27

Over the year, the Agency focussed on building the capacity to deliver the following activities, as identified in the Corporate Plan:

  • reaching out and supporting participants to contribute to social and economic life guided by the principles in the NDIS Outcomes Framework;
  • providing participants, their families and carers, with certainty of the care and support that is needed over a lifetime;
  • ensuring the decisions and preferences of people with disability are respected and they are afforded the dignity of risk where it is their choice; and
  • assisting people with disability (with support from their families and carers, where needed) to have the skills and confidence to participate in, and contribute to, community life and to protect their lives.

Key performance measures for Strategy 1.2

The Agency captured data during 2016-17 to establish social and economic baseline levels for 98 per cent of participants prior to entering the Scheme. The Agency will use this data to measure the impact of the Scheme in assisting with progress toward outcomes in future years. The baseline data identified that before joining the NDIS:

  • participants want to undertake courses and training, with 32 per cent of participants over 25 years of age saying they were unable to do a course or training they wanted to do in the last 12 months;
  • twenty-six per cent of participants over 25 years of age had a paid job in 2016-17, which can be benchmarked against the 76 per cent general employment to population ratio 28; and
  • thirty-six per cent of participants over 25 years of age had been actively involved in a community, cultural or religious group in the last 12 months.

Strategy 1.3

Strategy 1.3 is to ‘recognise, nurture and uphold informal support and care arrangements, especially for children and vulnerable adults’.29

Over the year, the Agency focussed on building capacity to deliver the following activities as identified in the Corporate Plan:

  • adopting a flexible approach in planning to take account of the needs and aspirations of participants, their families and carers, and the evolution of available supports;
  • recognising and supporting sustainable care by carers, families and other significant persons by building a more inclusive community and providing opportunities to share and learn from one another;
  • building community capacity and supports for people with disability who do not receive funded supports; and
  • developing positive relationships and informal support arrangements for people who do not have these relationships and/or arrangements.

Key performance measures for Strategy 1.3

  • Individual planning sessions occur for 100 per cent of participants.
  • Information Linkages and Capability building () is the component of the NDIS that provides information, linkages and referrals to efficiently and effectively connect people with disability, their families and carers, with appropriate disability, community and mainstream supports.  also helps to ensure that the NDIS establishes and facilitates capacity building supports for people with disability, their families, and carers that are not directly tied to a person through an individually funded package.
  • The NDIS aims to support care arrangements that are sustainable and forward looking.30 As participants spend longer in the Scheme, the NDIS expects to see indications that this is occurring. The baseline data captured during this first year of transition shows:
    • seventy-one per cent of families and carers rate their health as good or very good or excellent;
    • thirty-six per cent of families and carers have made plans for when they are no longer able to care for their family members with disability; and
    • forty-three per cent of families and
      carers say they are able to work as much
      as they want.

Commentary

As the Agency continues to gather data to track social and economic outcomes the success of the Scheme in delivering its objectives will become more apparent. This includes establishing mechanisms to assess the adequacy of funding for participants in the context of the achievement of individual outcomes and monitoring success in supporting dignity of risk where it is a participant’s choice.

21. This is one of the indicators of success under Goal 1 in the NDIA Corporate Plan 2016-21, page 17. Back to footnote

22. 2016-17 , page 151. Back to footnote

23. NDIA Corporate Plan 2016-21, page 17. Back to footnote

24. The performance target in the 2016-17 is that the ‘number of participants entering the Scheme are as per Bilateral Agreements and actuarial forecasts’ (page 151). Back to footnote

25. This refers to participants aged 15 and above. Back to footnote

26. This is one of the indicators of success under Goal 1 in the NDIA Corporate Plan 2016-21, page 17. Back to footnote

27. NDIA Corporate Plan 2016-21, page 17. Back to footnote

28. ABS Labour Force statistics, Dec 2016. Back to footnote

29. NDIA Corporate Plan 2016-21, page 17. Back to footnote

30. This is one of the indicators of success under Goal 2 in the NDIA Corporate Plan 2016-21, page 18. Back to footnote